Information and Support Facioscapulohumeral Muscular Dystrophy Society (FSH)
Record last updated 2022/12/06 Comment on this info .Update this info
Contact Information
Facioscapulohumeral Muscular Dystrophy Society (FSH)Contact: Kim Shanley, Community Engagement Coordinator
Email Address: [email protected]
Phone: 781-301-6060
Fax: 781-862-1116
View Information and Support Website
450 Bedford Street Lexington, MA 02420
Area Served: Greater Boston
Map Location Information and Support
Narrative
The FSH Society, Inc., is a 501 (c) 3 nonprofit volunteer health organization for information, education, advocacy & funds for research on facioscapulohumeral muscular distrophy (FSHD) world wide. The FSH Society offers assistance to individuals, families and professionals concerned with FSHD, publishes newsletters, brochures on FSHD in Spanish and English, holds scientific and patient conferences and support groups.
Service Types
- Disability Awareness
- Family Support
- Socialization Activities
Program Type
- Advocacy
- Communication
- Education
- Support Groups
Populations Served
- Hard of Hearing
- Muscular Dystrophy
- Other See Narrative
- Physical Disabilities
- Speech Impairment
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Accessibility Features
- Accessible Parking
- Accessible Public Transportation
- Accessible Restrooms
- Elevators
- Near Public Transportation
- Wheelchair Ramps
Additional Information
- Fees: Free Service, Personal Funds